persimune > How to get involved > PERSIMUNE data sources

Biobank

LabWare

Number of patients:

11565

Content

Contains information on all blodsamples and faecessamples stored in the PERSIMUNE biobank

Geografi

Rigshospitalet

Type of datasource

Direct access to datasource

Update frequency

All Patients are updated every night

Data period

2015 - blodsamples, 2016 - faeces samples

Copenhagen Hospital Biobank (Region Hovedstadens Biobank)

Number of patients:

17880

Content

A list of material stored in Region Hovedstadens biobank

Geografi

Region Hovedstaden

Type of datasource

Data file

Update frequency

Datadump - no regular update

Data period

2010-2015

Bio- and Genom Biobank, Danish Regions (Regionernes Bio- og Genombank (RBGB))

Number of patients:

8837

Content

A list of material stored in Regionernes bio og genombank

Geografi

National

Type of datasource

Data file

Update frequency

Data dump - no regular update

Data period

2010-2015

Biobank of excess specimen material, Department of Clinical Microbiology, RH

Number of patients:

30577

Content

A list of material stored in the KMA (clinical microbiology department)

Geografi

Rigshospitalet

Type of datasource

Data file

Update frequency

Data dump - no regular update

Data period

2008 -

The Danish Cancer Biobank (Dansk CancerBiobank)

Number of patients:

6893

Content

A list of material stored in the Danish Canser Biobank

Geografi

National

Type of datasource

Data file

Update frequency

Data dump - no regular update

Data period

2010-2015

Biochemistry

MEDCOM-Biochemistry

Number of patients:

Content

Biochemistry data from all labs in Denmark. Comply with the XRPT01-standard. Connection through Laboratoriesvarportalen.

Geografi

National

Type of datasource

Webservice using Sundhedsdatanettet

Update frequency

Continuously - All Patients are updated within 10-15 days

Data period

Period varies depending on lab, For 2014 and onwards, expected to be complete

Labka2

Number of patients:

263653

Content

Biochemistry results directly from the lab production system in the region

Geografi

Region Hovedstaden

Type of datasource

Direct database connection

Update frequency

Continuously - All Patients are updated at least once a day

Data period

2009 -

Labka historiske data

Number of patients:

35879

Content

A list of historical biochemistry analysis result. Contain a limited set of analysis.

Geografi

Rigshospitalet

Type of datasource

Data file

Update frequency

Data dump - no regular update

Data period

2005-2009

Demography and Diagnoses

Sundhedsdatabanken

Number of patients:

259681

Content

Information on the patients hospital contacts, diagnoses, procedures and demography.

Geografi

National but only data from Region Hovedstaden

Type of datasource

Direct access to datasource

Update frequency

All patients are updated every weekend

Data period

2007 -

Historical patients - PERSIMUNE cohort

MATCH

Number of patients:

3212

Content

Transplant patients registered in the MATCH system

Geografi

Rigshospitalet and Herlev

Type of datasource

Direct access to datasource

Update frequency

Continuously - All Patients are updated at least once a day

Data period

Data starting in 2011

Oncology

Number of patients:

40628

Content

Patients referred to the Oncology department

Geografi

Rigshospitalet, Herlev

Type of datasource

Direct access to datasource

Update frequency

System not in active use. Historical data

Data period

2005 -2016

Haematology

Number of patients:

12308

Content

Patients referred to the haematology department

Geografi

Rigshospitalet

Type of datasource

Data file

Update frequency

Data dump - no regular update

Data period

2005-2015

Infectious disease

Number of patients:

27362

Content

A list of patients from Infektionsmedicinsk og reumatologisk afd 2005-2015

Geografi

Rigshospitalet

Type of datasource

Data file

Update frequency

Datadump - no regular update

Data period

Patients in the period 2005-2015

Pediatric - Bone marrow transplant

Number of patients:

550

Content

Pediatric bone marrow transplant patients

Geografi

Rigshospitalet

Type of datasource

Data file

Update frequency

Data dump - no regular update

Data period

Dialysis

Number of patients:

1567

Content

Patients receiving dialysis treatment

Geografi

Rigshospitalet

Type of datasource

Data file

Update frequency

Data dump - no regular update

Data period

2005-2015

Imaging/diagnostics

RIS

Number of patients:

7420

Content

Imaging/diagnostics codes from RIS

Geografi

RH (Rigshospitalet), HVH (Hvidovre), BB (Bispebjerg), FRB (Frederiksberg).

Type of datasource

Direct access to datasource

Update frequency

Continuously - All Patients are updated at least once a day

Data period

2005 -

Medication

EPM3

Number of patients:

Data error from source, awaiting correct updates from CIMT

Content

Information on inpatients medication history.

Geografi

Region Hovedstaden

Type of datasource

Direct access to datasource

Update frequency

Data period

2012 -

Microbiology

Laboratoriesvarportalen-Microbiology

Number of patients:

Content

Microbiology data from all labs in Denmark as stored in MIBA. Comply with the XRPT05-standard. Connection through Laboratoriesvarportalen.

Geografi

National

Type of datasource

Webservice using Sundhedsdatanettet

Update frequency

Continuously - All Patients are updated within 10-15 days

Data period

2010 onwards, all labs except from SSI. 2013 onwards, all labs

MADS

Number of patients:

97414

Content

Microbiology results directly from the lab production system in the region

Geografi

Rigshospitalet

Type of datasource

Direct access to datasource

Update frequency

Continuously - All Patients are updated at least once a day

Data period

2005 -

Oncology

PPAS

Number of patients:

24805

Content

Information on oncology patients medication

Geografi

Rigshospitalet

Type of datasource

Direct access to datasource

Update frequency

All Patients are updated every night

Data period

2005 -

Radiation treatment

Number of patients:

65330

Content

Information on patients receiving radiation treatment

Geografi

Rigshospitalet

Type of datasource

Direct access to datasource

Update frequency

All patients are updated every night

Data period

2009 -

Pathology

Laboratoriesvarportalen-Pathology

Number of patients:

Content

Pathology data from all labs in Denmark as stored in Patobank. Comply with the XRPT04-standard. Connection through Laboratoriesvarportalen.

Geografi

National

Type of datasource

Webservice using Sundhedsdatanettet

Update frequency

Continuously - All Patients are updated within 10-15 days

Data period

2005 -

Prospective patients - PERSIMUNE cohort

Prospective cohort

Number of patients:

11215

Content

Information on consent given by the patients in the prospective cohort. Consent is registered in Labka when the initial PERSIMUNE blood sample is taken.

Geografi

Rigshospitalet

Type of datasource

Direct access to datasource

Update frequency

Continuously - check for new patients multiple times a day

Data period

2015 -

Vital signs

KISO

Number of patients:

127353

Content

Information on vital signs as blodpresure, pulse, temperature, height, weight etc.

Geografi

Region Hovedstaden

Type of datasource

Direct access to datasource

Update frequency

All patients are updated every weekend

Data period

2013 -

Definition

Number of patients: Calculated as unique CPR-numbers in a representative table from the source.

Content: The data content from the source.

Geografi: The geographical coverage of the data source.

Type of datasource: The way PERSIMUNE receives the data

Update frequency: How often the data is updated from the data source.

Data period: The timespan of the datasource OR the timespan in which PERSIMUNE receives data.
Some datasources may have data dating further back than the indicated period.
Organisational changes might have changed the coverage of geografi or patientgroups.